It’s time to GET LOUD for Canadians with Cystic Fibrosis
Join Canada’s largest CF family-led grassroots movement. Use your voice to make a difference and change the future of the Canadian CF community.
Take action now and lend your voice to the cause.
We have joined the 2022 Walk to Make Cystic Fibrosis History at the Toronto Zoo!
We are calling on the Premier of Ontario to be our Champion
Every Canadian deserves the right to breathe
Cystic fibrosis is a disease that leaves families very little hope for a child to live a long, vibrant life… until now. There is a BREAKTHROUGH medicine called Trikafta that is saving and transforming lives.
This breakthrough life -saving medicine is approved and prescribed across the world but is not available to Canadians.
The U.S Federal Drug Agency (FDA) and the European Medicines Agency (EMA) expedited the approval of Trikafta due to its transformational impact to patients during the clinical trials. Trikafta has received regulatory approval across the world while Canadians are left to wait and decline in health.
We refuse to stay silent. Thousands of Canadian families have joined the CF Get Loud movement and are working together to make positive change in Canada. With your help, we will save the lives of 4300 young Canadians that will not survive without access to modern CF medicine.
Join the movement.
“This should be a cause for major celebration”
As the world celebrated, Canadians quickly discovered that we were no longer leaders in quality of care and treatment of cystic fibrosis. We were falling behind the rest of the world, behind 20 other countries that prioritized their CF populations. These countries have systems and processes such as a Rare Disease Strategy that recognize the unique needs of people with rare disease and the challenges they face in getting access to new and innovative medicines. Our health system has no mechanism to assist in bringing rare disease medicines into Canada. Canadians are forced to wait - indefinitely. The one thing CF patients certainly don’t have is time.
Take Action
Are you passionate about helping CF patients gain access to life-saving medications? Are you a CF patient that is waiting for Trikafta?
We are only as strong as our collective efforts.
Let's amplify our message and grow the movement. We have fought this battle for too long and many have done it in isolation, without a patient-advocate community. It’s time to rally the troops and GET LOUD for CF.
CF GET LOUD - The largest CF grassroots movement in Canadian history.
Find out about our mission and how families from across Canada have joined together to GET LOUD.
“Your battle is our battle.
We will fight together. Together, we are unstoppable..
”
— CF GET LOUD