Take Action

We need your help to ensure that Trikafta gets to every CF patient that is waiting. We need you to GET LOUD with us.

60EBF94B-3515-4F9B-90DB-303C28FB009A.PNG

CANADA:

ONLY OUR CF DOCTORS SHOULD BE ABLE TO DECIDE WHAT MEDICINE WE NEED.

Health Canada has approved Trikafta for a list of genetic mutations, but our Canadian population is a beautiful mosaic of backgrounds and ancestries, making every patient unique. The rarest among us deserve the same chance at life, the same opportunity to try.

In Alberta, progress is happening. Recently, the provincial government changed its funding model for Trikafta, giving doctors the power to make treatment decisions based on their professional judgment and the specific needs of each patient. This change puts the decision-making where it belongs—in the hands of the experts who understand the nuances of CF and the potential of Trikafta.

This approach makes sense. CF patients live with a fragile balance of health, undergoing countless medical regimens, physiotherapy, and hospitalizations. They deserve the right to try any treatment that may help them, under the guidance of their doctors.

We are stronger together

 

GET LOUD on Social

 

Social media is a POWERFUL tool for advocacy. It can be your megaphone to help you rally the troops.

Share your story and your connection to the cause. Your voice is critical to the success of this movement.

Spread awareness by sharing our advocacy updates.

Be sure to tag your elected officials and get your message heard.

Get Political

 

Even if you have never considered yourself a ‘political person’, NOW is the time to get involved. You don’t need to feel overwhelmed or feel like you need to know all of the facts.

Arrange a meeting with your elected representative. At the very core of their oath is to serve their constituents, and local pressure can really push them to act.

You have lived it and seen first hand what CF looks like. Paint a picture for them, tell your story, get personal and don't be afraid to show emotion. We know that your story will appeal to their humanity. We will support you with additional resources.

For Federal Support: Reach out to your member of parliament
Look up your MP

For Provincial Support: Reach out to your provincial representative
Look up your MLA/MPP

Get your network involved

 

Think BIG. Who do you know in your personal network that could help elevate the message of CF Get Loud.

The team is always looking for contacts in media.

Tag it

Get your message to the people that need to hear it

 

Twitter Tags

@cfgetloud
@CdnHealth
@justintrudeau
@pattyhajdu
@erinotoole
@thejagmeetsingh
@ctvnews
@globalnews
@cbcnews
@fordnation
@jkenney
@PremierScottMoe
@johnhorgan4bc
@francoislegault
@StephenMcNeil
@dennyking

Hashtags

#CFGetLoud
#CFCantWait
#TrikaftaNow
#CysticFibrosis
#cdnpoli
#cdnhealth

Follow our journey.

Join the movement. Help save lives. #CFGETLOUD