As the world celebrated, Canadians quickly discovered that we were no longer leaders in quality of care and treatment of cystic fibrosis. We were falling behind the rest of the world, behind 20 other countries that prioritized their CF populations. These countries have systems and processes such as a Rare Disease Strategy that recognize the unique needs of people with rare disease and the challenges they face in getting access to new and innovative medicines. Our health system has no mechanism to assist in bringing rare disease medicines into Canada. Canadians are forced to wait - indefinitely. The one thing CF patients certainly don’t have is time.