Open Call for Feedback to CADTH

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YOUR VOICE COUNTS

CF patients and their families are key stakeholders in the review of Trikafta. Our lives depend on a positive review by CADTH. The draft review that was released on July 8th outlines unethical and limiting criteria for Trikafta. The draft demonstrates how misguided CADTH is on the nature of our progressive, all encompassing disease. At this time, we need YOUR voice to be heard. We need to be LOUDER than ever. If you have not yet reviewed the CADTH draft recommendations, please review our summary here.

Please use the below online form to share your thoughts on the draft recommendations. We will include quotes from these submission in our official CADTH response .

Please note: We will be accepting submissions until Sunday July 18th.

UPDATE: SUBMISSIONS ARE NOW CLOSED. Thank you to all of the CF families and supporters that took the time to provide feedback. We have added the comments to the CF Get Loud CADTH Submission.

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CF Get Loud’s Response to CADTH’s Draft Recommendations

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CADTH DRAFT Review Released