Beth Vanstone sits down with Living with Cystic Fibrosis Podcast. “CF Get Loud, the Canadian perspective.”
EPISODE SUMMARY
CF Mom Beth Vanstone has an 18 year old daughter with cystic fibrosis. Beth and Laura talk about the challenges people with CF we face in both Country's. They talk about the Institute for Clinical and Economic review (ICER) and the discriminatory impact that the Quality Adjusted Life Year (QALY) has on people with CF. They also talk about Insurance challenges in each Country.
EPISODE NOTES
Beth Vanstone talks about how a CF diagnosis thrust her into the world of advocacy. The two Moms (Laura and Beth) quickly find they have so much in common, from victories to challenges, even though they're living in different county's.