A Mother’s Fight for Her Son: Why Every Rare Life Deserves a Chance to Breathe

Provinces across Canada today are making the deliberate decision to leave out Ultra Rare Families . This is one family’s story about their fight for life-saving cystic fibrosis medicine for their son. This eye opening story highlights the gaps in our system and how many families in Canada are simply, LEFT OUT. Learn how only ONE province has stepped up to save lives.