News Updates#WEGOTLOUD CF Get Loud 1/26/21 CF Get Loud 1/26/21 Health Technology Assessment Read More CF Get Loud 1/19/21 CF Get Loud 1/19/21 #WEGOTLOUD Spotlight on Ted Falk Read More CF Get Loud 1/12/21 CF Get Loud 1/12/21 #WEGOTLOUD Spotlight on Jim Wilson Read More CF Get Loud 1/7/21 CF Get Loud 1/7/21 #WEGOTLOUD Spotlight - Elected Officials Edition Read More CF Get Loud 12/30/20 CF Get Loud 12/30/20 PMPRB guidelines delayed until July 1st, 2021 Read More CF Get Loud 12/22/20 CF Get Loud 12/22/20 Trikafta formally accepted for review by Health Canada - Part of ‘aligned review’ with CADTH/INESSS Read More CF Get Loud 12/21/20 CF Get Loud 12/21/20 Letter from pCPA to Jim Wilson MPP regarding current negotiations Read More CF Get Loud 12/18/20 CF Get Loud 12/18/20 Court rules PMPRB does not have unlimited jurisdiction Read More CF Get Loud 12/9/20 CF Get Loud 12/9/20 All-Party Emergency Access to Trikafta Caucus Read More CF Get Loud 11/16/20 CF Get Loud 11/16/20 Sickboy Podcast Interviews our very own, Stephanie Stavros Read More CF Get Loud 9/25/20 CF Get Loud 9/25/20 Junior Advocates Program, Back to School Workbook Released It all begins with an idea. Read More CF Get Loud 9/10/20 CF Get Loud 9/10/20 Beth Vanstone sits down with Living with Cystic Fibrosis Podcast. “CF Get Loud, the Canadian perspective.” Read More CF Get Loud 8/24/20 CF Get Loud 8/24/20 RESEARCH STUDY: PROJECTING THE IMPACT OF DELAYED ACCESS TO TRIKAFTA Read More CF Get Loud 8/4/20 CF Get Loud 8/4/20 Letters for Lives Campaign - PMPRB Submission Read More CF Get Loud 6/3/20 CF Get Loud 6/3/20 CF Get Loud Townhall Read More CF Get Loud 5/27/20 CF Get Loud 5/27/20 Canada, Don’t Give Up on Us. Read More CF Get Loud 2/24/20 CF Get Loud 2/24/20 CF Families GET LOUD for Access to Medicine at Queen’s Park Read More CF Get Loud 1/23/20 CF Get Loud 1/23/20 After ‘getting loud’, the First CF Patient in Canada is approved for Compassionate Care for Trikafta Read More Newer Posts
CF Get Loud 12/22/20 CF Get Loud 12/22/20 Trikafta formally accepted for review by Health Canada - Part of ‘aligned review’ with CADTH/INESSS Read More
CF Get Loud 12/21/20 CF Get Loud 12/21/20 Letter from pCPA to Jim Wilson MPP regarding current negotiations Read More
CF Get Loud 12/18/20 CF Get Loud 12/18/20 Court rules PMPRB does not have unlimited jurisdiction Read More
CF Get Loud 11/16/20 CF Get Loud 11/16/20 Sickboy Podcast Interviews our very own, Stephanie Stavros Read More
CF Get Loud 9/25/20 CF Get Loud 9/25/20 Junior Advocates Program, Back to School Workbook Released It all begins with an idea. Read More
CF Get Loud 9/10/20 CF Get Loud 9/10/20 Beth Vanstone sits down with Living with Cystic Fibrosis Podcast. “CF Get Loud, the Canadian perspective.” Read More
CF Get Loud 8/24/20 CF Get Loud 8/24/20 RESEARCH STUDY: PROJECTING THE IMPACT OF DELAYED ACCESS TO TRIKAFTA Read More
CF Get Loud 2/24/20 CF Get Loud 2/24/20 CF Families GET LOUD for Access to Medicine at Queen’s Park Read More
CF Get Loud 1/23/20 CF Get Loud 1/23/20 After ‘getting loud’, the First CF Patient in Canada is approved for Compassionate Care for Trikafta Read More